TY - JOUR
T1 - The impact of caregiving on the roles and valued activities of stroke carers
T2 - A systematic review of qualitative studies
AU - Jammal, Melissa
AU - Kolt, Gregory S.
AU - Liu, Karen P.Y.
AU - Dennaoui, Nariman
AU - George, Emma S.
N1 - Publisher Copyright:
Copyright: © 2024 Jammal et al. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.
PY - 2024/5/31
Y1 - 2024/5/31
N2 - Objective To understand the experiences of informal carers and the impact of role and activity changes on their health and wellbeing. Methods A systematic search of CINHAL, MEDLINE, Embase, APA PsycInfo, and Web of Science was conducted. Studies were eligible if they included informal stroke carers (≥18 years), used a qualitative methodology, explored the roles and valued activities of stroke carers, and were published in English. The 10-item Critical Appraisal Skills Programme checklist for qualitative studies was used to assess methodological quality. The results of the included studies were thematically synthesised. Results A total of 36 qualitative studies were included and four overarching themes were identified: (1) Life adjustment; (2) Changing role and identity; (3) Changing activities: From meaningful to purposeful; and (4) Understanding and supporting carers. Conclusion The sudden nature of stroke requires major readjustment in the carers life that has implications on their relationships, roles, and activities, subsequently impacting on their health and wellbeing. Health professionals and researchers should collaborate with stroke carers to identify their valued activities and implement realistic strategies to maintain these activities. Future interventions designed for carers should implement education about the importance of participating in valued activities and strategies to maintain these activities.
AB - Objective To understand the experiences of informal carers and the impact of role and activity changes on their health and wellbeing. Methods A systematic search of CINHAL, MEDLINE, Embase, APA PsycInfo, and Web of Science was conducted. Studies were eligible if they included informal stroke carers (≥18 years), used a qualitative methodology, explored the roles and valued activities of stroke carers, and were published in English. The 10-item Critical Appraisal Skills Programme checklist for qualitative studies was used to assess methodological quality. The results of the included studies were thematically synthesised. Results A total of 36 qualitative studies were included and four overarching themes were identified: (1) Life adjustment; (2) Changing role and identity; (3) Changing activities: From meaningful to purposeful; and (4) Understanding and supporting carers. Conclusion The sudden nature of stroke requires major readjustment in the carers life that has implications on their relationships, roles, and activities, subsequently impacting on their health and wellbeing. Health professionals and researchers should collaborate with stroke carers to identify their valued activities and implement realistic strategies to maintain these activities. Future interventions designed for carers should implement education about the importance of participating in valued activities and strategies to maintain these activities.
UR - http://www.scopus.com/inward/record.url?scp=85194844916&partnerID=8YFLogxK
U2 - 10.1371/journal.pone.0304501
DO - 10.1371/journal.pone.0304501
M3 - Journal article
C2 - 38820455
AN - SCOPUS:85194844916
SN - 1932-6203
VL - 19
JO - PLoS ONE
JF - PLoS ONE
IS - 5
M1 - e0304501
ER -