Psychosocial well-being of carers of people with epilepsy in Hong Kong

Mona M.K. Lee, Tatia M.C. Lee, Philip K.K. Ng, Anchor T.F. Hung, May Lan Alma Mary Gerardina Au, Virginia C.N. Wong

Research output: Journal article publicationJournal articleAcademic researchpeer-review

28 Citations (Scopus)


The purpose of this study was to explore the factors associated with the quality of life and emotional states of the caregivers of people with epilepsy in Hong Kong. Sixty-five primary caregivers were administered rating scales of mood, quality of life, and intensity of various epileptic and psychosocial variables. Twenty-two percent of respondents were considered to have severe levels of anxiety, and 14%, severe levels of depression. Three-quarters of the caregivers interviewed had below-average scores on the quality-of-life measure, indicating that the carers' psychosocial adjustment was impaired. Contrary to the findings of previous studies, caregivers of patients with additional illnesses or learning disabilities were not more distressed than caregivers of patients with epilepsy only. Demographic characteristics and other medical and social factors associated with the psychosocial well-being of the carers of people with epilepsy were discussed. The findings of this study suggest the importance of including systematic measures of people's subjective experiences and perceptions in the study of social and psychological aspects of epilepsy. ̧2002 Elsevier Science (USA).
Original languageEnglish
Pages (from-to)147-157
Number of pages11
JournalEpilepsy and Behavior
Issue number2
Publication statusPublished - 1 Jan 2002
Externally publishedYes


  • Carers
  • Chinese culture
  • Epilepsy
  • Psychosocial adjustment
  • Quality of life

ASJC Scopus subject areas

  • Neurology
  • Clinical Neurology
  • Behavioral Neuroscience


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