Psychometric validation of the needs assessment tool: Progressive disease in interstitial lung disease

  • Miriam J. Johnson
  • , Armita Jamali
  • , Joy Ross
  • , Caroline Fairhurst
  • , Jason Boland
  • , Carla Reigada
  • , Simon Paul Hart
  • , Gunn Grande
  • , David C. Currow
  • , Athol U. Wells
  • , Sabrina Bajwah
  • , Thanos Papadopoulos
  • , J. Martin Bland
  • , Janelle Yorke

Research output: Journal article publicationJournal articleAcademic researchpeer-review

16 Citations (Scopus)

Abstract

The inter-rater/test-retest reliability and construct validity of a palliative care needs assessment tool in interstitial lung disease (NAT:PD-ILD) were tested using NAT:PD-ILD-guided video-recorded consultations, and NAT:PD-ILD-guided consultations, and patient and carer-report outcomes (St George's Respiratory Questionnaire (SGRQ)-ILD, Carer Strain Index (CSI)/Carer Support Needs Assessment Tool (CSNAT)). 11/16 items reached at least fair inter-rater agreement; 5 items reached at least moderate test-retest agreement. 4/6 patient constructs demonstrated agreement with SGRQ-I scores (Kendall's tau-b, 0.24-20.36; P<0.05). 4/7 carer constructs agreed with the CSI/CSNAT items (kappa, 0.23-20.53). The NAT:PD-ILD is reliable and valid. Clinical effectiveness and implementation are to be evaluated.

Original languageEnglish
Pages (from-to)880-883
Number of pages4
JournalThorax
Volume73
Issue number9
DOIs
Publication statusPublished - 1 Sept 2018
Externally publishedYes

Keywords

  • interstitial fibrosis
  • palliative care

ASJC Scopus subject areas

  • Pulmonary and Respiratory Medicine

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