TY - JOUR
T1 - Considerations in developing and delivering a nonpharmacological intervention for symptom management in lung cancer: The views of patients and informal caregivers
AU - Ellis, Jackie
AU - Wagland, Richard
AU - Tishelman, Carol
AU - Williams, Mari Lloyd
AU - Bailey, Chris D.
AU - Haines, Jemma
AU - Caress, Ann
AU - Lorigan, Paul
AU - Smith, Jaclyn A.
AU - Booton, Richard
AU - Blackhall, Fiona
AU - Molasiotis, Alexandros
PY - 2012/12/1
Y1 - 2012/12/1
N2 - Context: Few studies consider patient's and caregiver's preferences when developing nonpharmacological interventions. This is important to develop acceptable and accessible nonpharmacological interventions for patients with cancer. Objectives: The objective of this study was to identify the views of patients with lung cancer and their informal caregivers on the desirable components of a novel nonpharmacological intervention for the management of the symptom cluster of cough, breathlessness, and fatigue, and their needs and preferences regarding uptake and delivery of the intervention. Methods: This study was qualitative in orientation, using semistructured interviews and framework analysis to elicit the views of 37 patients with lung cancer and 23 caregivers regarding the issues that were perceived to be important regarding the development and delivery of a nonpharmacological intervention. Results: A number of key issues were identified that carried important implications for patient participation and adherence to the intervention, including the perceived relevance of potential techniques; appreciable benefits in the short term; convenience; variation in patient preferences; timing of the intervention; venue; caregiver involvement; the provider of the intervention, and contact with other patients. Conclusion: The data from this study have provided insight into the key issues that are likely to influence the development, uptake, and delivery of a nonpharmacological intervention to help manage the respiratory symptom cluster of cough, breathlessness, and fatigue. It is crucial that these findings are considered when developing and modeling a nonpharmacological symptom management intervention.
AB - Context: Few studies consider patient's and caregiver's preferences when developing nonpharmacological interventions. This is important to develop acceptable and accessible nonpharmacological interventions for patients with cancer. Objectives: The objective of this study was to identify the views of patients with lung cancer and their informal caregivers on the desirable components of a novel nonpharmacological intervention for the management of the symptom cluster of cough, breathlessness, and fatigue, and their needs and preferences regarding uptake and delivery of the intervention. Methods: This study was qualitative in orientation, using semistructured interviews and framework analysis to elicit the views of 37 patients with lung cancer and 23 caregivers regarding the issues that were perceived to be important regarding the development and delivery of a nonpharmacological intervention. Results: A number of key issues were identified that carried important implications for patient participation and adherence to the intervention, including the perceived relevance of potential techniques; appreciable benefits in the short term; convenience; variation in patient preferences; timing of the intervention; venue; caregiver involvement; the provider of the intervention, and contact with other patients. Conclusion: The data from this study have provided insight into the key issues that are likely to influence the development, uptake, and delivery of a nonpharmacological intervention to help manage the respiratory symptom cluster of cough, breathlessness, and fatigue. It is crucial that these findings are considered when developing and modeling a nonpharmacological symptom management intervention.
KW - breathlessness
KW - cough
KW - fatigue
KW - Lung cancer
KW - relevance
KW - symptom management
UR - http://www.scopus.com/inward/record.url?scp=84870565564&partnerID=8YFLogxK
U2 - 10.1016/j.jpainsymman.2011.12.274
DO - 10.1016/j.jpainsymman.2011.12.274
M3 - Journal article
C2 - 22672922
SN - 0885-3924
VL - 44
SP - 831
EP - 842
JO - Journal of Pain and Symptom Management
JF - Journal of Pain and Symptom Management
IS - 6
ER -